Showing posts with label Special Needs. Show all posts
Showing posts with label Special Needs. Show all posts

Sunday, August 14, 2011

I want to run away

It's days like today that I envision myself packing a bag and catching the first bus out of town.  I think if it weren't for my boys, I could.  I know that sounds awful, it sounds awful to me! 

I just can't do this anymore. 

I can't take the rages.

I can't take the ups and downs. I hate seeing her happy as a clam one moment and a evil monster spewing obscenities, clawing and growling the next.

She is obnoxious and difficult to control.  An example:  She picked up a heavy metal chair and launched it across the room at me! She's just 6 so the chair didn't go very far, but what am I going to do in 2, 4, 6 years???  She is only going to get worse and more difficult, if not impossible to handle by myself.  Damage control will be much more difficult. 

I said a prayer today during her rage:  "Thank you God that she is the youngest!"  I can't imaging having younger children around that I would have to keep safe from her.

We started a new medication on Friday. A mood stabilizer called Trileptal.  Could this be the result of that change????  I was assured it was very rare to cause these kinds of problems.  We were told "Either it would work, or we wouldn't see any changes at all".

I'm just not buying it.




Sunday, July 24, 2011

Background story

I guess some background would be good to start with.  I'm, Mo4 and you can probably guess that means mother of 4.  I have 3 biological sons and 1 girl (Kit*) who was adopted from the foster care system.

Our sweet Kit was born in 2005.  We had been Foster Parents for about 4 months and had cared for several other babies and toddlers during that time.

When I got the call from our Caseworker there wasn't much information available.  A baby girl had been born that day (a Friday).  Shortly after birth her birthmother had a "Psychotic Episode".  The baby was taken into protective custody.  They told us that birthmother had a history of drug addiction, homelessness and bipolar and she had already lost custody of several other children. The baby would likely be released over the weekend and they needed a foster family to care for.  We agreed to take her, I was excited to get another little one as our previous foster baby had gone home just 5 days earlier.

On Sunday morning I got the call to come pick her up.  I took the itty bitty, but amazingly beautiful baby girl home to my husband and children.  Our entire family promptly fell in love with her.

Alarming symptoms and developmental delays began showing themselves almost immediately.  The first few weeks she was very easily overstimulated.  She simply could not tolerate more than 1 stimuli at a time.  We spent many days and nights sitting with her swaddled up tight, in the nursery in the pitch dark. Being careful not to rock in the chair or pat her little bottom. She would have been happy to just be left in there alone but we knew how much she needed to bond and so we took turns sitting there quietly holding her close.  By 2 weeks she was in Occupational Therapy for feeding therapy due to a weak suck reflex.  By 1 month, Physical Therapy was started for poor muscle tone and one sided weakness.  At her 4 month well baby check she couldn't lift her head off the table to turn it from one side to the other, something she should have been doing by 2 weeks and she hadn't even smiled yet.  The Doctor warned us at that visit that she was showing clear signs of Fetal Alcohol Exposure and the prognosis for her was not good.  I cried the entire way home but I was not going to give up on this baby!!  We increased the services and I worked with her frequently.  Speech therapy started by 9 months and we pressed on.  Slowly, but surely, she began to catch up. 

The biological parents visits had been cancelled because they weren't working their plan by the time she was 6 weeks old and before long caseworkers were talking about adoption.  It was as if she was meant to be ours!

By 3-4 our sweet girl was completely caught up and was pretty much on target developmentally but she was clearly not a typical child.  She frequently had a black cloud over her head and an extremely short fuse.  She was extremely impulsive and didn't seem to learn from her mistakes.  We always had to go above and beyond normal child proofing measures to keep her safe.

Recently, we learned that her birthmother had drunk alcohol "almost daily" during her pregnancy to self treat her drug addiction cravings.  Now we wade through the distinct possibility that she likely has FASD *and* the mood disorder genetically passed down from her mother.

All the love and therapies in the world did not change anything.  It's something we are still coming to terms with and we're in it for the long haul.

*All names used in this blog have been changed for privacy